April 10th, three years on 

April 10th saw our standstill continue. Oscar’s lung and kidney functions hadn’t improved, and we had no forward plan for more surgery. Without the surgery, Oscar could not leave the PICU.Oscar decided to use this time to get to hang out with his cuddly friends:



and we used it as a time to take more photos of him!

I’m sure Oscar recognised our voices, and he was now able to turn his head towards us when we spoke. I have a short video of me saying “open your eyes” and Oscar doing so. I’m pretty sure I could have said anything and he would have opened his eyes just because he was a nosy thing, but it makes for a sweet video anyway.

Oscar continued to do Oscar hand, and I continued to try to convince him to straighten his hand:


Oscar decided to compromise and straighten one finger:


This was something he had done one the day he was born, and it was good to see him do it again. We called it his posh finger.

(Remember this one finger, because in four days time I’ll tell you why Oscar was smarter than we knew.)


In the above photo you can see a tube coming out of Oscar’s chest. That was a chest drain that was put in during his surgery. If it hadn’t been for the heparin overdose, it’s likely the chest drain would have been removed by this point.

You will also notice there is blood on Oscar’s chest dressing. His chest wound had been healing well, but after his heparin overdose it started to cause problems. It began to open slightly and bled at times. (It’s worth mentioning that from this point forward there is going to be more blood visible on his chest in photos.)

Oscar’s nurse on April 10th night wrote in his diary:


Something I’ve not mentioned for a while is how Oscar was being fed. In the days that followed his surgery, he was allowed to have very small amounts of breast milk through an NG tube (it’s the blue tube in his photos. It went straight into his stomach.) This was started and stopped so many times as his body at first coped with it and then didn’t. I can’t actually recall what days he was being fed breast milk and what days he had just fluids.

On the days Oscar was able to have milk, he would chew along as it was being passed down the tube. As evidenced in the diary entry above, Oscar wasn’t fused about what he ate. He was particularly fond of vaseline. He also loved sucking on the sponges used to clean his mouth and on one occasion he decided to attempt to eat the tape that was holding his ventilator in place. We may have let him suck on that piece of loose tape for a minute before fixing it.

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